PATIENT RESOURCES & FINANCIAL ASSISTANCE PARTNERS

Hopes Source will advocate for and assistance patients that are in need of financial assistance, emotional & spiritual support, or physical wellness information. Our Outreach Advocates will take the time to evaluate the patient’s’ needs and act as a personal advocate on behalf of the Health Care Provider and patient.

Below is a compiled a comprehensive list of wonderful organizations that serve a wide variety of needs. Since healing and recovery should be the patient’s primary concern, our Outreach Advocates are waiting, wanting, and willing to help.

Our Advocates will match patients, providers, or family members with its network and partners. Everyone on the journey of medical recovery should have access to Financial Support Services that can improve quality of life and provide relief from distress.. Call us or click here today!.

A diagnosis of ALS is devastating news for patients and their family. Dealing with the extensive costs associated with any chronic illness only adds additional burden and stress. Some care is covered by a patient’s health insurance but some costs are not considered customary or reasonable, or not approved by some carriers.

There are organizations out there with programs that will help patients find financial assistance.

Please see a listing of ALS Organizations that have grants and financial assistance programs listed:

ALS Guardian Angels

This is a 501(c ) (3) public charity offers grants to help ALS patients with expenses not covered by insurance or other reimbursement programs.

http://www.alsguardianangels.com/what%20we%20offer.html

ALS Recovery Fund

The ALS Recovery Fund seeks to aid families impacted by ALS by providing financial assistance to those in need of equipment and/or supplies. The Patient Care Fund is available to all residents of Miami-Dade, Broward, Monroe and Palm Beach County diagnosed with ALS

http://www.alsrecovery.org/ALSpatientservices.html

Les Turner ALS Foundation

The Les Turner ALS Foundation offers a variety of financial assistance to ALS patients and their families. This includes the Ralph Russo Patient and Family Services Grant Program, the Dan Nelson Respite Care Grant Program, loan banks for augmentative communication devices and durable medical equipment and the Stuart Rosen ALS Transportation Fund.

http://www.lesturnerals.org/patient-services/grant-programs-and-equipment-loans/

NeedyMeds

This a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.

NeedyMeds’ mission is to be the best source of accurate, comprehensive and up-to-date information on programs that help people facing problems paying for medications and health care; to assist those in need in applying to programs; and to provide health-related education using innovative methods.

NeedyMeds is funded by small grants, donations, sponsorships, subscriptions to PAPTracker, and syndication of some of our database information. NeedyMeds also works with the patient assistance programs of several pharmaceutical distributors.

http://www.needymeds.org/copay_diseases.taf?_function=summary&disease_id=151&disease_eng=Amyotrophic%20Lateral%20Sclerosis&dx=18&drp=als

HealthWell Foundation

The HealthWell Foundation reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases.

http://www.healthwellfoundation.org/healthwell-and-needymeds-drug-discount-card

We will continue to post resources to grants and assistance programs as they become available. If you find ones you wish to share, please submit them to be added to this list.

http://informahealthcare.com/doi/abs/10.1586/14737167.2015.1039941

http://informahealthcare.com/doi/abs/10.3109/21678421.2014.951946

Life Insurance Guaranteed Issue
http://www.ncelifeplans.com/

International ALS or MND Organizations

The Motor Neurone Disease Association

The Motor Neurone Disease (MND) Association is the only national organization in England, Wales and Northern Ireland dedicated to the support of people with and those who care for them.

The International Alliance of ALS/MND

International Alliance of ALS/MND Associations – The International Alliance is the peak body for national organizations who support people living with ALS/MND.

North American Nonprofit Organizations

Are you looking for support groups and ALS clinics in your local town or city in the United States?. We’ve made it easy to find them, please visit ourAmerican directory ALS clinics & support groups.

als association

ALS Association– The ALS Association is the only national not-for-profit health agency dedicated solely to the fight against ALS through research, patient and community services, public education, and advocacy.

Signature Event:In 2005, the ALS Associations “Walk to d’Feet ALS” held approximately 150 walks nationwide and raised over $10 million in support of cutting-edge research and patient services programs (USD – reported 2006).

alssla

ALS Society of Canada– mission is to fund research towards a cure for ALS and support provincial ALS Societies to provide quality care for those affected by ALS.

Signature Event:In 2005, the ALS Society of Canada’s “Walk For ALS” raised over $1.7 million dollars for ALS Research and patient care services (CAD – reported 2006).

alstdf

ALS Therapy Development Foundation– The ALS Therapy Development Foundation is a nonprofit biotechnology company discovering treatments for patients alive today.

rideforlife

Ride For Life– mission is to raise public awareness of amyotrophic lateral sclerosis, assist research in finding a cure, support ALS patients and their familes, and provide the ALS community with the latest ALS related news and information.

Signature Event:During the past 7 years the “Ride For Life” has seen ALS patients ride their wheelchairs from Yankee Stadium to Washington DC – raising over 1 million dollars (USD – reported 2006).

PackardCenter

Robert Packard Center for ALS Research at Johns Hopkins– The Robert Packard Center for ALS Research is non-profit organization that operates out of the Johns Hopkins School of Medicine in Baltimore and focuses solely on finding effective treatments for ALS, and ultimately, a cure. To ensure progress, the Robert Packard Center recruits only scientists of recognized merit, minimizing the often lengthy grant process typical of academic medicine. This international group of investigators meets once a month to share ideas and discoveries, a collaborative process that greatly speeds up the progress of research and understanding of ALS.

AACR – Survivor and Patient Advocacy 866-423-3965

Alex’s Lemonade Stand Foundation 610-649-3034

American Association for Cancer Research 215-440-9300

American Cancer Society 800-227-2345

American Childhood Cancer Organization 855-858-2226

American Institute for Cancer Research 800-843-8114

American Society for Radiation Oncology (ASTRO) 800-962-7876

CURE Childhood Cancer 800-443-2873

Canary Foundation 650-646-3200

Cancer Coalition of South Georgia 229-312-1700

Cancer Federation 951-849-4325

Cancer Prevention and Treatment Fund 202-223-4000

Cancer Project 202-686-2210

Cancer Research Institute 800-992-2623

Cancer Support Community 888-793-9355

Cancer Support Community (Atlanta) 404-843-1880

Cancer.Net (patient website of American Society of Clinical Oncology) 888-651-3038

CenterWatch 866-219-3440

The Chemotherapy Foundation 212-213-9292

Children’s Cancer Recovery Foundation 800-238-6479

Children’s Cancer and Blood Foundation 212-297-4336

Coastal Empire Candlelighters 912-308-6755

CureSearch for Children’s Cancer 800-458-6223

Disease InfoSearch 202-966-5557

Focused Ultrasound Foundation 434-220-4993

Friends of Cancer Research 202-944-6700

International Cancer Advocacy Network (ICAN) 602-618-0183

International Cancer Alliance for Research and Education (ICARE) 301-656-3461

John Wayne Cancer Foundation 949-631-8400

National Foundation for Cancer Research 800-321-2873

The National LGBT Cancer Project 212-673-4920

The Oley Foundation 800-776-6539

Pharmaceutical Research and Manufacturers of America 202-835-3400

Pine Street Foundation 415-488-6848

Prevent Cancer Foundation 800-227-2732

Scott Hamilton CARES Foundation 844-726-8884

Stand Up To Cancer 213-240-3919

T.J. Martell Foundation (Nashville/Atlanta/Houston) 615-256-2002

TheAnswerToCancer.org 800-992-2623

Thumbs Up For Lane Goodwin Childhood Cancer Foundation

weSPARK Cancer Support Center 818-906-3022

American Cancer Society

For nearly 100 years, the American Cancer Society (ACS) has worked relentlessly to save lives and create a world with less cancer and more birthdays. Together with millions of our supporters worldwide, we’re helping people stay well, helping people get well, finding cures, and fighting back against cancer.

Bright Pink – Be Brilliant. Be Bold. Be Bright Pink

Bright Pink is the only national non-profit organization focusing on the prevention and early detection of breast and ovarian cancer in young women, while providing support for high-risk individuals.

Breast Cancer dot Org

Our mission is to help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.

Cancer Hope Network

Cancer Hope Network is a non-profit organization that provides free and confidential one-on-one support to cancer patients and their families. As our core offering, we match cancer patients or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

Cancer Resource Foundation

The Cancer Resource Foundation is a national nonprofit organization that advocates and provides support for the prevention, early detection, diagnosis, treatment, and survivorship of cancer through patient assistance, education and research.

Cancer Support Community

The mission of the Cancer Support Community is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Check Your Genes

Check Your Genes exists because we know a simple test can change lives, and not enough people know about it.

ClinicalTrials.gov

ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

FORCE

FORCE: Facing Our Risk of Cancer Empowered is a national nonprofit dedicated to the hereditary breast and ovarian cancer (HBOC) community. With over 50 outreach groups throughout the U.S., and international affiliates, FORCE programs provide support, education, and awareness on behalf of individuals and families affected by HBOC, including women, men, survivors and previvors. FORCE also takes a leadership role in guiding research and policy affecting the high-risk community.

Foundation for Women’s Cancer

The Foundation for Women’s Cancer was founded by the Society of Gynecologic Oncology (SGO) in 1991. The Foundation for Women’s Cancer is a 501 (c) (3) not for profit organization dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment.

HIS Breast Cancer Awareness

HIS Breast Cancer Awareness Foundation, Inc. is a registered 501C Non-Profit recognized by the state of New York and U.S. Co-Founded by Harvey I Singer and Vicki Singer Wolf who are both BRCA2 mutation carriers and are both Breast Cancer Survivors, along with their mother and aunt. HIS Breast Cancer was created to assist men and all others who are interested in learning the risks, treatments and prevention of male breast cancer as well as dealing with the emotional aspect of being a “guy with a woman’s disease”.

John W. Nick Foundation

To educate the world about the risk of breast cancer in men and to provide preventive and reactive measures to cancer through advocacy and education

Life Insurance Guaranteed Issue

Looking for additional insurance, But think you can’t get it? If the answer is YES – We have the solution.

Li-Fraumeni Syndrome Association

LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Living Beyond Breast Cancer

To empower all women affected by breast cancer to live as long as possible with the best quality of life.

National Cancer Institute

The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients

National Comprehensive Cancer Network

Our mission, as an alliance of leading cancer centers devoted to patient care, research, and education, is to improve the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

Pink Ribbon Survivors Network

The Pink Ribbon Breast Cancer Survivors Network exists with the dual purpose of serving the needs of breast cancer survivors and the needs of health care professionals that care for breast cancer survivors. Our Foundation’s tagline: “Community, Education, Recovery, and Growth” expresses our mission for breast cancer survivors as they journey beyond active treatment.

PolyPeople

We are a support group who aim to provide support and information to anyone whose lives are or have been affected by Familial Adenomatous Polyposis and Gardner’s Syndrome (FAP) plus Peutz Jegher’s Syndrome, Juvenile Polyposis and MYH (Mut Y Homolog) whether patient, family, friend or those with an interest in the Gene.

Prevent Cancer Foundation

In 1985, compelled by the memory of her late father, Edward P. Richardson, who had died of cancer one year earlier, Carolyn Aldigé embarked on a mission. She founded the Prevent Cancer Foundation, a 501(c)3 nonprofit, with the hope of sparing others from the pain and suffering caused by cancer. Aldigé believed firmly that an emphasis on prevention, not just treatment, could help decrease cancer deaths and incidence rates. Since then, through its research, education and outreach efforts, the Foundation has worked hard to spread the prevention message to the public, spurring ground-breaking research and new ways to reach captive audiences.

Prevent Cancer Foundation

In 1985, compelled by the memory of her late father, Edward P. Richardson, who had died of cancer one year earlier, Carolyn Aldigé embarked on a mission. She founded the Prevent Cancer Foundation, a 501(c)3 nonprofit, with the hope of sparing others from the pain and suffering caused by cancer. Aldigé believed firmly that an emphasis on prevention, not just treatment, could help decrease cancer deaths and incidence rates. Since then, through its research, education and outreach efforts, the Foundation has worked hard to spread the prevention message to the public, spurring ground-breaking research and new ways to reach captive audiences.

PTEN World

PTEN World is for people with Cowden Syndrome/BRRS and their families and medical providers. Members may support each other on their profiles and in the discussion forum. If you are interested in learning more about our support group, then we hope you’ll sign up!

Sharsheret

Sharsheret, Hebrew for “chain,” is a national not-for-profit organization supporting young Jewish women and their families facing breast cancer. Our mission is to offer a community of support to women, of all Jewish backgrounds, diagnosed with breast cancer or at increased genetic risk, by fostering culturally-relevant individualized connections with networks of peers, health professionals, and related resources.

Triple Negative Breast Cancer Foundation

The mission of the Triple Negative Breast Cancer Foundation is to raise awareness of triple negative breast cancer and to support scientists and researchers in their effort to determine the definitive causes of triple negative breast cancer, so that effective detection, diagnosis, prevention and treatment can be pursued and achieved.

Young Survival Coalition

Young Survival Coalition (YSC) is the premier global organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful.

A Time To Heal 402-319-3124

AACR – Survivor and Patient Advocacy 866-423-3965

AARP 877-434-7598

America’s Baby Cancer Foundation 714-655-4431

American Cancer Society 800-227-2345

American Childhood Cancer Organization 855-858-2226

American Psychosocial Oncology Society 434-293-5350

Angel On My Shoulder 800-860-3431

Association of Cancer Online Resource 212-226-5525

Atlanta Cancer Care Foundation, Inc. 404-213-1667

Bag It! 520-575-9602

Ben’s Friends 800-273-8255

The Brendan Borek High Tides Memorial Fund 609-967-0100

CANCER101 646-638-2202

CURE Childhood Cancer 800-443-2873

Camp Kesem 260-225-3736

Camp Sunshine 866-786-2267

Camp Sunshine at Sebago Lake 207-655-3800

CanCare 888-461-0028

The Cancer Connection 512-459-5883

Cancer Navigators 706-295-4119

Cancer Support Community 888-793-9355

Cancer Support Community (Atlanta) 404-843-1880

Cancer Survivors Network (Online Community) 800-227-2345

Cancer.Net (patient website of American Society of Clinical Oncology) 888-651-3038

CancerCare 800-813-4673

Caregiver Action Network 202-454-3970

Caring Connections 800-658-8898

CaringBridge 651-452-7940

Catherine Boulay Foundation 610-966-3466

Chemo Angels

Children’s Treehouse Foundation 303-322-1202

Climb for Cancer Foundation 352-333-9663

Coastal Empire Candlelighters 912-308-6755

Cuddle My Kids 484-301-3047

CureSearch for Children’s Cancer 800-458-6223

Disease InfoSearch 202-966-5557

Elixir Fund 800-494-9228

Emilio Nares Foundation 877-507-7788

Family Caregiver Alliance 800-445-8106

First Descents 303-945-2490

GetPalliativeCare.org 212-201-2670

Gold Rush Cure Foundation 949-296-5444

Guide Posts of Strength, Inc. 336-883-4477

Harmony Hill 360-898-2363

Hearts & Hands 612-816-4600

Hospice Foundation of America 800-854-3402

Imerman Angels 877-274-5529

Jack and Jill Late Stage Cancer Foundation 404-537-5253

Jessie Rees Foundation NEGU 888-648-6348

Kids Wish Network 888-918-9004

LIVESTRONG 855-220-7777

Latinas Contra Cancer 888-522-8110

ManageCancer.Org

Mautner Project of Whitman-Walker Health 202-797-3570

MetaCancer Foundation, Inc.

MyLifeLine.org Cancer Foundation 720-883-8715

The National Children’s Cancer Society 314-241-1600

National Coalition for Cancer Survivorship 877-622-7937

National Comprehensive Cancer Network (NCCN) 215-690-0300

National Hospice and Palliative Care Organization 703-837-1500

The National LGBT Cancer Project 212-673-4920

National Organization for Rare Disorders (NORD) 203-744-0100

Native American Cancer Research Corporation

Nueva Vida, Support Network for Latinas with Cancer 202-223-9100

Ohio State The James Online Cancer Community 323-657-5557

People Against Childhood Cancer

Scott Hamilton CARES Foundation 844-726-8884

Scott Hamilton CARES Foundation – 4th Angel 866-520-3197

Stanford Hospital Cancer Supportive Care Program 650-725-9481

Stronghold Ministry 877-230-7674

Stupid Cancer 877-735-4673

SuperSibs

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer 617-938-3484

TeamConnor Childhood Cancer Foundation 972-663-7327

Triage Cancer 424-258-4628

Visiting Nurse Health System 404-215-6000

Visiting Nurse Health System (Fayetteville) 404-739-0466

Visiting Nurse Health System (Gwinnett) 404-410-7630

Visiting Nurse Health System (Kennesaw) 404-979-3119

Well Spouse Association 800-838-0879

Wellness Housse of Annapolis 410-990-0941

Zichron Shlome Refuah Fund 718-438-9355

weSPARK Cancer Support Center 818-906-3022

AACR – Survivor and Patient Advocacy 866-423-3965

American Cancer Society 800-227-2345

American Childhood Cancer Organization 855-858-2226

American Society for Radiation Oncology (ASTRO) 800-962-7876

Association of Cancer Online Resource 212-226-5525

Believe Big 888-317-5850

CANCER101 650-646-3200

Cancer Coalition of South Georgia 229-312-1700

Cancer Research Institute 800-992-2623

Cancer Support Community 888-793-9355

Cancer Support Community (Atlanta) 404-843-1880

CancerCare 800-813-4673

CancerQuest 404-727-0308

Candlelighters for Childhood Cancer of South Georgia 229-834-0987

CenterWatch 866-219-3440

Coalition of Cancer Cooperative Groups 215-789-3600

CureSearch for Children’s Cancer 800-458-6223

Disease InfoSearch 202-966-5557

East Georgia Cancer Coalition 706-542-6449

Focused Ultrasound Foundation 434-220-4993

Friends of Cancer Research 202-944-6700

Georgia Cancer Info 404-523-8735

Guide Posts of Strength, Inc. 336-883-4477

International Cancer Advocacy Network (ICAN) 602-618-0183

LIVESTRONG 855-220-7777

Latinas Contra Cancer 888-522-8110

Lazarex Cancer Foundation 877-866-9523

Marti Nelson Cancer Foundation

Mary Stolfa Cancer Foundation 516-859-8165

The National Collegiate Cancer Foundation 240-515-6262

National Comprehensive Cancer Network (NCCN) 215-690-0300

National Foundation for Cancer Research 800-321-2873

The National LGBT Cancer Project 212-673-4920

National Lymphedema Network 800-541-3259

National Organization for Rare Disorders (NORD) 203-744-0100

Native American Cancer Research Corporation

Northwest Georgia Regional Cancer Coalition 706-291-9998

Nueva Vida, Support Network for Latinas with Cancer 202-223-9100

PearlPoint Cancer Support 877-467-1936

People Against Childhood Cancer

Pharmaceutical Research and Manufacturers of America 202-835-3400

Scott Hamilton CARES Foundation – RadCare 865-321-4589

Stand Up To Cancer 213-240-3919

Stanford Hospital Cancer Supportive Care Program 650-725-9481

TheAnswerToCancer.org 800-992-2623

Triage Cancer 424-258-4628

Vital Options International 818-508-5657

weSPARK Cancer Support Center 818-906-3022

1Hope for Cancer

Alex’s Lemonade Stand Foundation 610-649-3034

Alliance for Fertility Preservation 415-535-6088

Allyson Whitney Foundation

America’s Baby Cancer Foundation 714-655-4431

American Cancer Society 800-227-2345

American Childhood Cancer Organization 855-858-2226

American Children’s Cancer Foundation 855-222-3428

American Society for Radiation Oncology (ASTRO) 800-962-7876

Andre Sobel River of Life Foundation 310-276-7111

The Andrea Grace Soter-Simonson Memorial Foundation 805-477-9810

Andrea Lynn Cancer Fund 815-893-9706

The Andrew McDonough B+ Foundation 302-563-8389

Angel Airline Samaritans 800-296-1217

Angel Fund Foundation

Arms Wide Open Childhood Cancer Foundation 732-904-2799

The Assistance Fund 855-845-3663

Association of Community Cancer Centers (ACCC) 301-984-9496

Athletes vs. Cancer

Atlanta Cancer Care Foundation, Inc. 404-213-1667

Beauty Foundation 732-719-9909

Blake Bertie Cancer Foundation 620-330-1500

Brenda Mehling Cancer Fund

The Brendan Borek High Tides Memorial Fund 609-967-0100

The Builders Foundation

CURE Childhood Cancer 800-443-2873

Cameron Siemers Foundation for Hope 949-412-4922

Cancer Foundation of Northeast Georgia 706-353-4354

Cancer Resource Center of the Desert 866-423-2723

Cancer Survivors’ Fund 281-437-7142

CancerCare 800-813-4673

CancerCare Co-Payment Assistance Foundation 866-552-6729

Candlelighters for Childhood Cancer of South Georgia 229-834-0987

Caring Voice Coalition 888-267-1440

Casey Cares Foundation 443-568-0064

Cash Hyde Foundation 406-646-6079

Childhood Cancer Society

Children’s Angel Flight 800-296-1217

Children’s Cancer Recovery Foundation 800-238-6479

Children’s Organ Transplant Association 800-366-2682

Clayton Dabney Foundation 214-361-2600

Compass to Care 773-657-3269

Conquer Childhood Cancer Now 419-576-7021

Cuck Fancer.

The David Andrew “Pooh” Maddan Foundation

The Devin Laubi Foundation 508-636-7369

Emilio Nares Foundation 877-507-7788

Endure to Cure 866-400-2121

Family Reach Foundation 973-394-1411

Fertile Action 877-276-5951

Friends of Man 303-798-2342

Georgia Cancer Info 404-523-8735

Glory, Hope & Life 770-533-4705

Good Days from CDM 877-968-7233

HealthWell Foundation 800-675-8416

Hearts & Hands 612-816-4600

Henry County Cancer Services 770-288-6510

Hinote’s Heroes 612-562-3080

Hope for Young Adults With Cancer

Hugs and Kisses 561-819-9471

The Jennifer Ireland Foundation

Joanna McAfee Childhood Cancer Foundation 478-293-1670

Karen E. Mumford Cancer Foundation 216-214-8691

Kelly’s Dream 410-256-7017

Kids Cancer Alliance 502-365-1538

Lazarex Cancer Foundation 877-866-9523

Life Insurance Guaranteed Issue 800-991-5922

Lights for Life 970-231-1644

Little Star Foundation 800-543-6565

ManageCancer.Org

Mesothelioma 1-800-692-8608

The National Children’s Cancer Society 314-241-1600

The National Collegiate Cancer Foundation 240-515-6262

National Comprehensive Cancer Network (NCCN) 215-690-0300

National Organization for Rare Disorders (NORD) 203-744-0100

Native American Cancer Research Corporation

NeedyMeds 800-503-6897

Nicki Leach Foundation 904-716-5394

Notes4Cancer

The Partnership for Prescription Assistance

Patient Advocate Foundation 800-532-5274

Patient Services, Inc. (PSI) 800-366-7741

The Pearce Q. Foundation 302-753-8612

Rocky Mountain Foundation of Hope 303-921-0475

Shades Hopes Dreams 407-468-3020

Sid Weber Memorial Cancer Fund of Rabun County 706-746-3350

The Someday Foundation 563-543-5547

Stella Amoah Cancer Foundation 401-721-5916

Steph’s Wild Ride

Stupid Cancer 877-735-4673

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer 617-938-3484

Take a Swing at Cancer 508-293-1459

Teen with a Dream 720-519-4574

Thumbs Up For Lane Goodwin Childhood Cancer Foundation

Triage Cancer 424-258-4628

UnitedHealthcare Children’s Foundation 855-698-4223

WE BELIEVE Foundation 240-232-7795

Walk with Sally 310-322-3900

Zichron Shlome Refuah Fund 718-438-9355

weSPARK Cancer Support Center 818-906-3022

Angel Food http://www.angelfoodministries.com/ distribute food to those in need Consumer Guide to Getting and Keeping Health Insurance http://www.healthinsuranceinfo.net/

CancerCare has 2 sections with helpful information:
Tips for Finding Financial Assistance sectionhttp://www.cancercare.org/get_help/assistance/tips_assist.php and Financial Help for People with Cancer http://www.cancercare.org/pdf/fact_sheets/fs_financial_en.pdf

The Support and Resources page on the National Cancer Institute website http://www.cancer.gov/cancerinfo/support/ provides links to information about cancer support organizations, finances, insurance, and hospice and home care.

Hope Cancer Fund http://www.hopecancerfund.com/ wants to make the difference that it takes to make that fight for survival a better one. Phone: 1-877-601-4285

The National Coalition for Cancer Survivorship has online resource guides to organizations offering financial assistance, see http://www.canceradvocacy.org/resources/financial.html

National Association for the Terminally Ill http://www.terminallyill.org/SERVICES.htm Phone: 888-847-0390, E-mail: info@terminallyill.org – Offers financial assistance to the children and families of those suffering from a terminal illness whose life expectancy is two years or less. The foundation helps with day-to-day living expenses such as: rent or mortgage, groceries, electric, car payments, insurance payments, etc.

The Patient Access Network Foundation http://www.patientaccessnetwork.org/ (866-316-7263) assists patients with out-of-pocket costs associated with their treatment.

Patient Advocate Foundation http://www.patientadvocate.org/index.php ,http://www.patientadvocate.org/ (800-532-5274) provides education, legal counseling, Co-pay Relief Program, and referrals for people with cancer who need assistance managing insurance, financial, debt crisis, and job discrimination issues.

Help With Paying Bills Helpwithpayingbills.org

Life Insurance Guaranteed Issue Life Insurance Guaranteed Issue

Medline Plus: Hospice Care http://www.nlm.nih.gov/medlineplus/hospicecare.html

National Cancer Institute: Hospice http://www.cancer.gov/cancertopics/factsheet/Support/hospice

The National Hospice and Palliative Care Organization http://www.nhpco.org/templates/1/homepage.cfm

Hospice Foundation of America http://www.hospicefoundation.org/

Hospice Directory http://www.hospicedirectory.org/

National Association for Home Care and Hospice http://www.nahc.org/

Life Insurance Guaranteed Issue http://www.ncelifeplans.com/

List of Hospice Organizations http://www.medical-assistant.net/hospice-care#org

You may notice that many groups and organizations now have a lot of information on the Internet, and it may be harder to call or reach a real person to ask questions. When you do call you might find that their answering messages encourage you to find the information you need on their website. For many groups, this is a way to save money and focus more funds on services for those in need. But it doesn’t work for everyone who needs help.

Many people, especially families who are having financial troubles, don’t have Internet access at home. This can make it harder for them to find what they need. You may want to see if your local public library offers use of their computers and Internet access at no cost. An added benefit is that volunteers or staff there may be able to help if you’re having trouble finding things.

Still, you don’t always need Internet access to find help. Many organizations also provide toll-free phone numbers so that people without Internet access can learn about and ask for services. Don’t be embarrassed to tell people that you don’t have Internet access and you can’t check their website.

And you can always call us, day or night, to find out about getting the help you need.

Help with the cost of basic charges for phone service may be available from Temporary Assistance for Needy Families (TANF; see “To learn more” for contact information). Speak with the eligibility worker in your county department of social services for more information.

Families that have problems controlling phone charges may want to think about buying pre-paid calling cards, pre-paid cell phones, or plans with pre-paid minutes. If you have a monthly mobile phone plan, call your mobile company before you go over your minutes limit. Sometimes they can help you keep from going over your limit for the month.

The Universal Service Administrative Company (USAC) is another resource that may help if your income is very low. Visit their website at www.usac.org/li/getting-service/benefits.aspx to learn more about phone service help that’s available in your state. Or you can call 1-888-641-8722 and follow the low income/lifeline prompts.

You may also want to call the American Cancer Society to find out about other local sources of help with telephone service.

National Association of Hospital Hospitality Houses
800-542-9730
www.nahhh.org
Provides accommodations for families and patients receiving medical treatment away from home. Rates typically range from $5-$15 per day (sometimes free).

Joe’s House
877-563-7468
http://www.joeshouse.org/Home/tabid/36/Default.aspx
The mission of Joe’s House is to be a housing resource for cancer patients and their families who must travel away from home for medical treatment. Our site lists hundreds of cancer treatment centers and nearby lodging facilities.

Hope Lodge
American Cancer Society operates locations of Hope Lodge near many cancer treatment centers, offering free temporary lodging in a nurturing home-like environment. You can find the locations and learn how to make a reservation through their webpages.
http://www.cancer.org/docroot/subsite/hopelodge/index.asp

A Time To Heal 402-319-3124

American Cancer Society 800-227-2345

The Assistance Fund 855-845-3663

Bag It! 520-575-9602

Believe Big 888-317-5850

BrittiCares International 323-393-0778

CANCER101 646-638-2202

CanCare 888-461-0028

Cancer Legal Resource Center 866-999-3752

Cancer Resource Center of the Desert 866-423-2723

Cancer Support Community 888-793-9355

Cancer Support Community (Atlanta) 404-843-1880

Cancer and Careers 646-929-8032

Cancer.Net (patient website of American Society of Clinical Oncology) 800-813-4673

CancerQuest 404-727-0308

Caring Connections 800-658-8898

CaringBridge 651-452-7940

Cooking with Cancer 205-978-3570

Dream Foundation 888-437-3267

HealthWell Foundation 800-675-8416

Hope for Two…The Pregnant with Cancer Network 800-743-4471

Imerman Angels 877-274-5529

KidsCope

LIVESTRONG 855-220-7777

Latinas Contra Cancer 888-522-8110

Look Good Feel Better 800-395-5665

Make-A-Wish 800-722-9474

Make-A-Wish Georgia 770-916-9474

National Coalition for Cancer Survivorship 877-622-7937

National Hospice and Palliative Care Organization 703-837-1500

NeedyMeds 800-503-6897

Nueva Vida, Support Network for Latinas with Cancer 202-223-9100

The Partnership for Prescription Assistance

Patient Advocate Foundation 800-532-5274

Prevent Cancer Foundation 800-227-2732

RadiologyInfo.org

Scott Hamilton CARES Foundation – ChemoCare 844-268-3901

Stand Up To Cancer 213-240-3919

Sunrise Day Camp 516-766-4341

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer 617-938-3484

weSPARK Cancer Support Center 818-906-3022

Listed below are several sources of help paying for cancer prescription drugs such as imatinib (Gleevec) and sunitinib (Sutent).
http://www.copays.org/
1-866-512-3861
Patient Advocate Foundation’s Co-Pay Relief (CPR) Program provides direct co-pay assistance for pharmaceutical products to insured Americans who qualify financially and medically. They do assist patients diagnosed with GIST who are taking Gleevec or Sutent. They help sarcoma insured patients with co-pays so they don’t have to choose between food or medications.

Patient Access Network Foundation
http://www.panfoundation.org/index.php?option=com_content&view=article&id=280&Itemid=250
Patient Access Network Foundation accepts online applications for prescription assistance to US residents whose income is less than 500% of the federal poverty level.

Patient Services, Inc.
http://www.uneedpsi.org/
1-800-FON-PSI-1
They have a separate department for GIST patients.

Partnership For Prescription Assistance
http://www.PPARX.org
1-888-477-2669
4 PPA-NOW
Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies.

Glivec International Patient Assistance Program (GIPAP) through The MAX Foundation
https://www.maxaid.org/Default.aspx?trgt=gipap

The Max Foundation (TMF) is a US-based non-profit cancer organization with international focus. TMF is dedicated to helping patients with blood-related cancers and other rare cancers worldwide by facilitating access to treatment and providing care and support for those who have limited access to resources.

The Glivec International Patient Assistance Program (GIPAP) is a program of Novartis Pharma AG. The Max Foundation is a partner in the administration of GIPAP. As part of our Patient Services, patients who are screened, approved, and referred by TMF for a donation of Glivec through GIPAP may also benefit from access to the following TMF services:

  • locally-based, culturally competent care and support specialist
  • patient support groups
  • informational, emotional, and practical support
  • help navigating their health care system

Novartis Patient Assistance Program (for Gleevec)
1-866-884-5906
800-942-3424

Pfizer FirstResource (for Sutent)
1-877-744-5675, then choose option 1

RxAssist is a compilation of drug-cost assistance programs run by all pharmaceutical companies.
rxassist.org

NeedyMeds is a guide to drug-cost assistance programs.
needymeds.com

The Assistance Fund is a next generation 501(c)3 nonprofit organization created to make advanced biotech therapies available to the underinsured. http://theassistancefund.org/

LifeSource Direct is a prescription assistance discount card.

Patient Advocate Foundation Assistance Programs by State, http://www.patientadvocate.org/report.php
(800 532 5274)

Temporary Assistance for Needy Families (TANF) is a grant program that provides monthly cash to help pay for food, clothing, housing, utilities, transportation, phone, medical supplies, and other basic needs not paid for by Medicaid. (TANF also helps states provide training and jobs for the people in welfare programs.) A social worker can tell you about your state’s plan or see the “To learn more” section for TANF contact information.

Angel Flight America
877-621-7177
www.angelflightamerica.org

Network of 4,500 pilots who provide transportation in corporate jets, space-available basis, to cancer patients going to recognized cancer treatment centers listed with the American College of Surgeons and/or the National Institutes of Health. Patients must be able to walk up and down the steps to a private plane without assistance. Patients must not require oxygen, IV, or any other form of life support during the flight.

Corporate Angel Network, Inc.
866-328-1313
www.corpangelnetwork.org

CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.

National Patient Travel Center
http://www.patienttravel.org:80/

This airline-sponsored program collects donated frequent flyer miles for patients to use to travel for medical care.

Air Compassion America
http://www.aircompassionamerica.org/

Air Lifeline (888) 675-1405
They are volunteer private pilots using their own planes to transport patients to treatment facilities.

MAP: Here is a link to a nice map that shows some of the different flight organizations by state. http://aircharitynetwork.org/about-us/
To be automatically routed to your region, call toll-free (877) 621-7177

Assistance Programs for the Uninsured at the National Cancer Institute’s website www.cancer.gov/cancertopics/factsheet/support/financial-assistance shows options for cancer patients without health insurance

HealthWell Foundation http://www.healthwellfoundation.org/index.aspx The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including: Prescription drug coinsurance, copayments, and deductibles, Health insurance premiums, Other selected out-of-pocket health care costs .

Life Insurance Guaranteed Issue http://www.ncelifeplans.com 800-991-5922

The Patient Access Network Foundation http://www.patientaccessnetwork.org/ (866-316-7263) assists patients with out-of-pocket costs associated with their treatment.

Patient Advocate Foundation http://www.patientadvocate.org/help.php 1-800-532-5274 is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment, and preservation of their financial stability.

Patient Services, Inc. http://www.uneedpsi.org/CMS400Min/index.aspx (800-366-7441) provides assistance with insurance premiums and co-payments for people with chronic diseases.

ZichronShlomeRufuah Fund http://www.zsrf.org/ Phone: 718-GET-WELL (438-9355), Fax: 718-853-0761 – A Jewish support group.

Eldercare Locator to find Your Area Agencies on Aging
http://www.eldercare.gov/
Eldercare Locator, a public service of the U.S. Administration on Aging connecting you to services for older adults and their families.You can also reach Eldercare at 1-800-677-1116. If you are 60 years of age or more, check out this site for both information and case management services. They can also help guide you through government programs and entitlements.

Financial Assistance and Other Resources for People With Cancer: www.cancer.gov/cancertopics/factsheet/support/financial-assistance

Social Security Disability http://www.ssa.gov/disability/

Medicaid http://www.cms.hhs.gov/home/medicaid.asp

Medicare http://www.medicare.gov/

National Association of State Medicaid Directors, http://www.nasmd.org/Home/home_news.asp
(202-682-0100)

Supplemental Security Income (SSI) is designed to supplement the income of eligible families with low incomes and limited assets in which there’s a disabled individual. Children qualify if they meet Social Security’s definition of disability. To get SSI, your income and assets must fall below a certain level.

Children can qualify if they meet Social Security’s definition of disability. Income criteria are checked by the local Social Security Administration office. Disability evaluation specialists at the state Social Security office decide if the child is disabled. Not every child with a cancer diagnosis is considered disabled.

Note that SSI is different from SSDI (Social Security Disability Income), which is only available to those who contributed to Social Security during their working years.

In many states, Medicaid is given to children getting SSI, but you may need to apply for it separately. You can get more information about SSI from the team social worker or from the nearest Social Security Administration office listed in the US Government section of your local phone book. See the “To learn more” section for more information.

Some government programs help with food costs. The programs listed below are run by the US Department of Agriculture for different groups of people, and offer food help in different ways. Some families may qualify for more than one type of help. These programs include:

Supplemental Nutrition Assistance Program or SNAP (formerly the Food Stamp Program). It allows people to shop for food in grocery stores using a special Electronic Benefits Transfer card, much like a bank card.

Food Distribution Programs (these programs distribute food directly to needy families):

  • Commodity Supplemental Food Program (CSFP)
  • The Emergency Food Assistance Program (TEFAP)

Women, Infants and Children (offers vouchers; some health departments give food or formula):

  • Farmer’s Market Nutrition Program
  • Senior Farmers’ Market Nutrition Program

School meals (served to children only in schools):

  • National School Lunch Program
  • Fresh Fruit & Vegetable Program
  • School Breakfast Program
  • Special Milk Program
  • Team Nutrition

Summer Food Service Program (meals for kids at community sites when school’s out)

How to reach these programs: To ask about SNAP by phone, call your local health department or social services department. See your phone book’s blue pages or call 1-800-221-5689 to get the local number. For all the other programs, call the National Hunger Hotline at 1-866-348-6479 (1-866-3-HUNGRY); for Spanish, call 1-877-842-6273.

Keep in mind that some individuals and families can qualify for more than one type of help. You can learn more about all of these programs and others by visiting www.whyhunger.org/findfood.
FIND FOOD PANTRIES in your area
http://www.foodpantries.org/

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The National Patient Travel Center (NPTC) is a central clearinghouse that refers callers to over 3 dozen charitable or special discounted patient air transport service groups. NPTC can help patients find a program to assist with the costs of air travel for illness-related reasons, including air ambulance services.

The National Patient Travel Helpline screens callers, verifies the illness and need for transport, and determines if the caller is eligible for help through one of the air travel programs. You can call them at 1-800-296-1217, or visit them online at www.patienttravel.org.

People who have Medicaid may qualify for help with travel to medical centers and doctors’ offices for treatment. This can take the form of payment or being reimbursed (paid back) for gas, payment of bus fare, or it may mean using a van pool. County departments of social services in each state arrange for help with transportation, but families must ask for it by talking with their Medicaid case worker.

The American Cancer Society Road To Recovery program is available in some areas. Trained volunteers drive patients and families to hospitals and clinics for treatment. Contact your local American Cancer Society office for more information on what’s available in your area.

The Leukemia & Lymphoma Society, through its Patient Aid program, can help some families with the cost of gas and parking for outpatient treatment. This aid is only for those with blood cancers (leukemia, lymphoma, and myeloma). There’s a limit on the amount of financial help to each patient and family for each year. Check with your team social worker about this program or contact the Leukemia & Lymphoma Society at 1-800-955-4572 orwww.lls.org.

Community and church groups may be sources of help with travel or its costs, too. Also, talk to your team social worker about getting help with hospital or clinic parking fees.

Most families find it hard to turn to others or to agencies and outside groups for financial help. The extra expenses of a child’s cancer may be the first time a family has had serious problems with money. Families should remember that their problems in such a situation are often short-lived and not unique. And in the future, they could be the ones who offer help to others.

Here are a few possible sources of help for families who need extra financial support at this time:

  • Income assistance for low-income families through Supplemental Security Income (SSI) benefits (see below)
  • Income assistance from the Temporary Assistance for Needy Families (TANF) program (see below)
  • Help with treatment-related travel, meals, and lodging from public and private programs
  • Help with basic living costs (like rent, mortgage, insurance premiums, utilities, and telephone) from public and private programs
  • Help from church, civic, social, and fraternal groups in the community
  • General help from special funds in the medical center or community
  • Help from targeted fundraising for an individual patient or family

The team social worker may be able to give you more information about resources that might help your family. There are also organizations and written materials that can help you learn more about fundraising strategies (see “To learn more”).

Life Insurance Guaranteed Issue http://www.ncelifeplans.com 800-991-5922

Cancer Survivorship Resources in English

Legal

Critical Mass – Mission Control: A search tool for localized resources to address cancer survivorship needs

Thrive/Survive: 10 to Thrive eBook: A comprehensive easy to read guide on cancer survivorship issues for young adults

Cancer Survivorship Resources in Spanish

Cancer and Careers Publications in Spanish

National Cancer Institute: Siga adelante: la vida después del tratamiento del cancer

Cancer Support Community: Cancer Insurance Checklist: Guía de Cobertura Médica para Personas con Cáncer